I know that June, July and August are the winter months in Australia. Right now it is summer, in the States, but it has not been very warm. Much of the time, regardless of the season, I am cold. In my blogs I have been trying to encourage people to think of different methods and telling them that there is more than one way to solve a problem. Here are some things I have done to try to stay warm. My problem was trying to keep my hands and arms warm when I was outside. My fingers are always clenched in a loose fist position. It was very difficult for my wife or nurse to put regular gloves on my hands. It quickly became evident that mittens would work best. Unfortunately, mittens created problems of their own. It was impossible to keep my thumb in the thumb of the mitten. The major problem with mittens however, was that once I took them off I was unable to get them back on by myself. So I designed what I like to call Quad Mitts. They have an opening at each end with the front one tighter. I was able to get my wife's friend to knit a trial pair and they worked extremely well. The picture below shows the pattern that we used. Note that the cuff is extra long and can be folded over what I am wearing so I don't have to worry about them coming off. When I need to use my bare hand I just push it though the hole in the front end and then pull the end back over my hand when I am finished. I am a big man so you may need to adjust the measurements according to your own size. If you know someone who will knit for you maybe you want to think about a pair of sleeves (my arms are always cold) and/or leg warmers. Often in the morning I will have my nurse put my sleeves on with a tee-shirt and then I will take them off when the day warms up. Recently I cut out part of the back of a sweatshirt. I am able to put the sweatshirt on and take it off by myself and it’s not necessary to worry about pulling it down behind me. This was a simple thing to do but it keeps most of the parts of my body I can feel warm.
In my previous three blogs I have encouraged individuals with disabilities to change their attitude, be willing to take some risks and begin to try some different ways to make their lives a little easier. I talked the talk but now it is time for me to walk the walk and show you some things that I’ve done to adapt equipment for my use. Below is a materials list of items that will be helpful to have around for making adjustments to things you use.
My hands are normally in a loose grip position. It is almost impossible for me to grip anything tightly. In order to hold on tight my hands must be strapped on to the object. I noticed lacrosse and hockey players wrap tape repeatedly around the same spot on their sticks to prevent their hands from sliding off the stick, so I decided to try it. If you look at the attached video (Adapting a Broom) you will see how I use friction tape and a piece of wooden dowel to enable me to use a broom. The friction tape has been used to make what I call a “stop.” On a long handle, such as a broom or rake, you should decide where you want your lower hand positioned and place the “stop” right there. Wrap tape repeatedly around the same spot until you have built up a raised area on the handle. Grip the broom or rake as best you can. When your hand slides up the handle it will come to rest against the “stop” and prevent any further upward movement.
The turning of the tool in my hands frustrates me to no end. I have used several different adaptions to help me control them. A rake or broom is of little use if it turns over when one goes to use it. In order to stop the roll over I drill a hole in the end of the handle, if there is not already one, and insert a piece of dowel, round pieces of wood of varying diameters. A piece of tape on either side of the shaft will hold the dowel in place or I attach the dowel through the hole using a rubber band. This enables my wife to remove the dowel if it gets in her way. In the picture I am loading the wheelbarrow with straw I have raked by turning the rake over and sliding it under the straw. Holding on to the dowel prevents the rake from rolling over.
We have a wire wreath-like birdfeeder which is filled with peanuts. We then hang the wreath outside for Blue Jays and other birds. They will pull the peanuts out one by one. As you can see in the video, the kitchen floor is quite a mess when I finish. So I use the broom I have adapted to clean up. Use this technique on other long handled tools like a mop, leaf rake and other garden tools.
I can only speak from my own personal experiences, sharing what I have learned and what I believe to be important. Attitude, Attitude, Attitude I have become convinced over the last eleven years that attitude is much more important to individuals who are physically challenged than ability. To look on a new situation not as a problem but as a challenge needing to be met, may actually set one’s mind free of the mental restraints which prevent one from finding a solution.
Attitude towards the future will play a great role in how one adapts to any new lifestyle. I am sure there are many people who would look at me confined to a wheelchair and think that it is probably one of the worst things that could happen to anyone. It doesn't matter what other people think, what is important is what I think. I had little control over what happened to me but I have almost complete control over how I deal with my situation, and feeling in control is critical to progress and recovery. What I believe and how I handle the results of my accident will determine how I live and enjoy the rest of my life. I have good days and bad days but ultimately the control of my situation and attitude rests within me.
I know I have the ability to cope with what has happened to me, and I can decide how I will handle this and subsequent challenges I will face. The strength to deal positively with any challenge is in every one of us. I do not see myself as a person with a disability I see myself as being challenged. Christopher Reeve said "I refuse to allow a disability to determine how I will live my life. I don't mean to be reckless, but setting a goal that seems a bit daunting actually is very helpful toward recovery."
I know that June, July and August are the winter months in Australia. Right now it is summer, in the States, but it has not been very warm. Much of the time, regardless of the season, I am cold. In my blogs I have been trying to encourage people to think of different methods and telling them that there is more than one way to solve a problem. Here are some things I have done to try to stay warm. My problem was trying to keep my hands and arms warm when I was outside. My fingers are always clenched in a loose fist position. It was very difficult for my wife or nurse to put regular gloves on my hands. It quickly became evident that mittens would work best. Unfortunately, mittens created problems of their own. It was impossible to keep my thumb in the thumb of the mitten. The major problem with mittens however, was that once I took them off I was unable to get them back on by myself. So I designed what I like to call Quad Mitts. They have an opening at each end with the front one tighter. I was able to get my wife's friend to knit a trial pair and they worked extremely well. The picture below shows the pattern that we used. Note that the cuff is extra long and can be folded over what I am wearing so I don't have to worry about them coming off. When I need to use my bare hand I just push it though the hole in the front end and then pull the end back over my hand when I am finished. I am a big man so you may need to adjust the measurements according to your own size. If you know someone who will knit for you maybe you want to think about a pair of sleeves (my arms are always cold) and/or leg warmers. Often in the morning I will have my nurse put my sleeves on with a tee-shirt and then I will take them off when the day warms up. Recently I cut out part of the back of a sweatshirt. I am able to put the sweatshirt on and take it off by myself and it’s not necessary to worry about pulling it down behind me. This was a simple thing to do but it keeps most of the parts of my body I can feel warm.
