Thanks to Joanna Nicol for her insight on the recent National Disability and Carers Congress and NDIS....her blog can be found here: http://willowdove.com/blog/
With apologies to my international readers this is about a very important political movement happening here in Australia to help people with disabilities cover the living costs of having a disability in an enabling way I would really appreciate it if you are happy to refer this post to any Australian that you know. Thanks. Joanna
Part of the reason that I was in Melbourne this week was to attend the National Disability and Carers Congress.
It was an interesting exercise in people watching, as well is a great deal more. Most of the people attending were service providers who, it has to be said were unsure what to do with me. I was one of about 25 people who use wheelchairs, and have made a business or, like me, represent a service that seeks to improve the lives of people with disabilities and their carers. This was among 1000.
The Disability and Carers Alliance is not something that I was aware of. I’m not sure how long it’s been around. But it struck me to some degree that the alliance, however old or long is a tenuous one established to get everybody on the same page and fighting towards the National Disability Insurance Scheme. This is something that although it smells a little bit like the latest silver bullet, in a similar way to the development of the now endorsed Disability (Access to Premises–Buildings) Standards, I think this might well have a very good and profound impact on the living standards of people with disabilities.
That is of course if like all things we can get the balance right. The balance between individual freedom and flexibility to choose and the unavoidable budgetary constraints, which means that it is unrealistic, unworkable and unfair to expect a blank cheque to be given out to every individual who has a disability.
The biggest thing that impressed me was the business case and the fact that the Productivity Commission could see the business case. Without compassion to human rights, social conscience, “well we’re really should because it’s the right thing to do” type arguments, these people who in one case had nothing to do with disability, could see the usefulness of including people with disabilities and increasing both their participation and comfort for a mere 12 ½ billion dollars.
That isn’t a lot of money really when you consider that the current cost most of 6 ½ billion doesn’t include the people with disabilities in the country get no government assistance with the costs of their mobility, communication and self-care needs and are being simultaneously vastly underutilised.
I was pleased that after the rallying cry, the first real order of business was, to examine the cold hard facts and actively for the time being avoid using the soft fluffy arguments, which aren’t always the most useful, although they are often the first to be drawn on.
I will no doubt have more to say about the Congress and the NDIS in coming days, and onward in the lead up to government response which is due by the end of the year after the Productivity Commission gives the government its report in July. the government then have until November to respond.
In the meantime, if you believe that people with disabilities have the right and responsibility to make a contribution, and then every Australian counts, could you please go to this website and with your three quick clicks say so?
For another argument ABC Ramp Up has a guest post from one of the conveners of the Congress.
This is the first time since the International Year Of Disabled People in 1981, that I have seen such an opportunity to get the community of people with disabilities in whatever form and our friends families and supporters politically and socially mobilised to make a difference. Whatever happens at the end of the year, that much I am proud of.
I always appreciate hearing accounts of people who were otherwise completely unaware of disability advocacy groups getting involved and seeing things from our points of view. I think far too often, people take their good health for granted, and don't realize how quickly the tides of good fortune can turn. I was always healthy, and was diagnosed in my mid-20's with a life-changing condition. I definitely stress the importance of being prepared for the unexpected...Long-Term Disability insurance, for example, is one of the few things we can do to help ease the financial struggles that accompany any serious diagnosis. You never know what life is going to throw at you.
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